What’s it like to experience ovarian cancer as a man? In this episode of Kickin’ It, Nora and Randalynn sit down with Nolan Stuckenschneider, a trans man, drag king and ovarian cancer grad. Nolan shares his ovarian cancer story, the healthcare challenges he faces as a trans man, and steps we can take toward inclusivity. We hope you enjoy this episode of Kickin’ It!
In the latest episode of the Kickin’ It podcast, Nora and Randalynn chat with ovarian cancer grad, Kim Simmons Emory. We discuss Kim’s long road to diagnosis, symptom awareness, Kim’s quest to find her blood sisters to share her cancer history as an adoptee, and much more. We hope you enjoy our chat with Kim!
October 13th is National Metastatic Breast Cancer Day. To honor this day, I am releasing a never before heard conversation between me and Emily Garnett, a beautiful, smart, fierce advocate for the MBC who passed away in March of this year from this unrelenting disease.
How can you love your body post-cancer?
With Practice and Patience.
Self-love is not something that magically grows within me. It does not come easily and it is not permanent. Yet, our society treats it as if it is as natural as breathing rather than a skill that can be learned and strengthened.
Towards the end of my cancer treatment, I wrote this love/apology letter to my body, and I found that it healed me more than any medication.
Tomorrow marks one of my favorite holidays in the United States, Thanksgiving. It is a non-denominational holiday that revolves around the celebration and tradition rooted in the first Thanksgiving dinner- a time when Native Americans and Pilgrims came together to break bread, celebrate harvest and connect, despite any perceived differences.
Thanksgiving provides us a yearly opportunity to recognize those things for which we are grateful. For me, one of those things has been cancer. OK, maybe not cancer itself, but my experience with cancer. I am absolutely grateful for it. How cancer became the catalyst for me to make the connection between a joyful life and practicing gratitude.
Do you deal with neuropathy? It's a common long term effect for those who have endured chemotherapy. Nora shares a tip on how she manages the numbness and soreness in her feet. What are your Cancer Grad tips? Share them in the comments, or reach out to us at info@cancergrad.org !
A year ago this month, I nervously posted my topless mastectomy photo series on the internet. Not knowing what the reaction would be, I prepared for the WORST (an avalanche of slut shaming internet trolls, hate mail from Breast Cancer Patients saying "I am insensitive", and my father being mortified) and hoped for the BEST (internet trolls showing compassion, breast cancer patients finding comfort and joy, and The Ellen Show begging to have me on).
Thankfully, the reaction was the Best Case (minus getting on The Ellen Show) and the internet proved to be incredibly kind to a WOMAN SHOWING HER BREASTS ON THE INTERNET.
In 2014, a year after my mother passed away from ovarian cancer, I was planning a preventative bilateral mastectomy to lower my risk of cancer--thanks BRCA1 genetic mutation. Three days before my appointment to schedule that surgery, I was diagnosed with Breast Cancer.
“If you want to make GOD laugh, tell him your plans.”
“The truth is, I was making the photos I wanted to see when I started this process. This series gave me a way to reframe my experience and accept my new body in the process. ”
Before removing my breasts, I wanted photographic evidence of their original splendor but I didn't want it to look like mug shots of attempted murders taken from my cell phone. Instead, I imagined images that captured the changing emotions of each stage in the mastectomy/reconstruction process.
I told everyone that my goal was to change the images women saw of mastectomies. Rather than simple Before and After photos, these would share the Evolution, the Life, and the HUMOR in this dark situation. But the truth is, I was making the photos I wanted to see when I started this process. This series gave me a way to reframe my experience and accept my new body in the process.
The incredible women, Alexa and Ellie, of Blast 'Em Photography lovingly came on board, along with Brynn Burg (Bride of Frankenstein MUA/HAIR) and Tiffany Alfonso (Mannequin MUA).
"Topless Rosie"
Photographer- Blast 'Em MUA & Hair- Aniela McGuinness Model- Aniela McGuinness
One Week Prior to My Mastectomy.
“Are nipples shameful?”
Gasp... REAL Nipples. When the photo series got picked up by the news, this was the only image they censored. The feminist in me finds that funny/heartbreaking.
"Topless Rosie" is an ode to the WWII propaganda image. Taken a week before my double mastectomy and the first time I EVER bared my BARE breasts for a camera, I wanted to capture the "We Can Do It" spirit of determination that was missing in all of the medical mastectomy "before" photos that filled the internet.
"Cut to Pieces"
Photographer- Blast 'Em MUA & Hair- Brynn Berg Model- Aniela McGuinness
Two weeks after my double mastectomy.
“I felt broken.”
Two weeks post mastectomy, with the expanders slightly filled and no nipples, I felt like the Bride of Frankenstein. I was broken and cut to pieces--physically and emotionally. (The stitches around my shoulders and collar bone were movie make-up created by the talented Brynn Berg).
"Plastic Emotions"
Photographer- Blast 'Em MUA- Tiffany Alfonso Model- Aniela McGuinness
At the end of 4 months of chemo and with the expanders filled.
“There was this pressure to always be Happy.”
There are so many layers of emotion in this photo. It was taken at the end of 4 months of intense chemo, my expanders were fully inflated, and I looked like a mannequin. It felt like I had become a base model human without the external trappings that define us; hair, clothes, breasts.
During this crappy time, as the treatments were starting to take their toll on me, there was this pressure to continuously be HAPPY. The moment I showed any fear, anxiety, sadness, or depression, people would spew out cliques, "Stay Positive", "Be Strong", "You are going to be FINE". Much of the time was spent managing other's emotions and FAKING my own. I learned that in those moments that all I wanted someone to say was "This sucks" and just be with me as I cried.
"#FreeTheNipples"
Photographer- Blast 'Em MUA & Hair- Aniela McGuinness Model- Aniela McGuinness Prosthetic Nipples by Pink-Perfect
Five months post chemo and two months after my breast reconstruction.
“I feel free of shame or guilt about my body. ”
Cancer ignited a rebellion within me. Never before had I posed topless because I was a "Good Girl." I followed societies unspoken rules.
Cancer helped burn that away. The human body is beautiful, we are allowed to love ourselves, and there is no reason we should have to hide our bodies. Cancer made me a Feminist and that is why I created this last photo.
I must admit that I still feel shame for the first image. I am embarrassed to show my nipples, even though those nipples are buried in a hazardous waste pile. The censorship of my real nipples goes all the way to my core. YET, this final image, with prosthetic nipples, I feel free of shame or guilt about my body.
Love,
Special Thank you to those who made this HAPPEN:
Reconstructive Surgeon- Dr. Christopher Low and Breast Cancer Surgeon Dr. Avisar
Photography Team- Blast 'Em Photography (Alexa and Ellie)
MUA/Hair for Bride of Frankenstein- Brynn Berg
MUA for Mannequin- Tiffany Alfonso
Wig for Bride of Frankenstein- On loan from Chris and Michelle Diamantides
Prosthetic Nipples- Pink Perfect
Buzzfeed Contact- Jenny Lorenzo helped make this whole thing go viral.
Halloween is for kids and cancer patients! There is a joy that overflows from a child when asked, “What do you want to be for Halloween?” With its endless possibilities to express who they want to become, who they idolize. As a cancer patient, the opportunity returns.
Ania, is an RN who had Breast Cancer at age 32. Click the photo to follow her on Instagram @FUCancer32.
Lara Honnor was diagnosed with Triple Negative Breast cancer at age 31. Click the photo to follow her on Instagram @Blonde_Pony.
Halloween 2014 -a week after my double mastectomy- there was no party but there was an appointment to remove my final drain bag. Circumstance made my costume…I was the Bride of Frankenstein, cut up and put back together. My amazing husband dressed as Dr. Frankenstein to support my crazy.
It brought joy to what could have been an otherwise traumatizing situation. I had not seen my bare chest until that appointment and when I did my first thought was “What a F*CKING badass”. It set the tone for my journey to follow.
Love,
